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Genetics, ethics and human values : human genome mapping, genetic screening and gene therapy, proceedings of the XXIV CIOMS conference, Tokyo and Inuyama City, Japan, 22-27 July 1990 / held under the auspices of the Science Council of Japan and co-sponsored by the World Health Organization and the United Nations Educational and Cultural Organization ; edited by Z. Bankowski & A. M. Capron.

Contributor(s): Material type: TextTextPublication details: Geneva : CIOMS, 1991.Description: 200 pISBN:
  • 9290360461
Other title:
  • Declaration of Inuyama
Subject(s): NLM classification:
  • QZ 50
Abstract: Explores the unique ethical issues raised by spectacular recent advances in molecular genetics, including progress in mapping the human genome, the introduction of new tools for prenatal screening and for the detection of genetic defects in asymptomatic persons, and the development of experimental therapies that promise to cure genetic disorders by acting directly to correct the mutant gene. Predicting that researchers will, perhaps within a decade, identify every gene capable of harming human health, the book takes a future-oriented approach, concentrating on the need to anticipate ethical dilemmas and develop guidelines at both the clinical and research levels. Topics discussed range from the ethical issues surrounding population screening for the cystic fibrosis gene to the question of whether the availability of new diagnostic tests could lead to genetic discrimination by employers and insurers or racial hygiene to eliminate undesirable physical or personality traits. Particular attention is given to ethical issues that arise when advances in diagnosis by means of genetic techniques outstrip advances in treatment. Practical experiences gained in current genetic screening and counselling programmes are also reported. The book has three main parts. Papers in the first part, devoted to human genome mapping, review current mapping projects in the USA and Japan, predict the most likely clinical gains, and discuss the novel ethical problems created by these gains. Genetic screening forms the focus for the second group of papers, which report experiences in screening and counselling programmes for b-thalassemia, Huntington's disease, and familial amyloidotic polyneuropathy, and point to the need for an international code of ethics in medical genetics before the human genome is mapped. The final group of papers considers the new ethical and policy issues raised by the development of therapies capable of correcting the mutant gene and thus offering truly curative treatment for the hundreds of major, lethal genetic diseases.
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Item type Current library Call number Copy number Status Date due Barcode
Books Books WHO HQ READING-RM QZ 50 91GE (Browse shelf(Opens below)) 1 Available 00033181
Books Books WHO HQ BORROWABLE-COLL-STACKS QZ 50 91GE (Browse shelf(Opens below)) 2 Available 00033180

Explores the unique ethical issues raised by spectacular recent advances in molecular genetics, including progress in mapping the human genome, the introduction of new tools for prenatal screening and for the detection of genetic defects in asymptomatic persons, and the development of experimental therapies that promise to cure genetic disorders by acting directly to correct the mutant gene. Predicting that researchers will, perhaps within a decade, identify every gene capable of harming human health, the book takes a future-oriented approach, concentrating on the need to anticipate ethical dilemmas and develop guidelines at both the clinical and research levels. Topics discussed range from the ethical issues surrounding population screening for the cystic fibrosis gene to the question of whether the availability of new diagnostic tests could lead to genetic discrimination by employers and insurers or racial hygiene to eliminate undesirable physical or personality traits. Particular attention is given to ethical issues that arise when advances in diagnosis by means of genetic techniques outstrip advances in treatment. Practical experiences gained in current genetic screening and counselling programmes are also reported. The book has three main parts. Papers in the first part, devoted to human genome mapping, review current mapping projects in the USA and Japan, predict the most likely clinical gains, and discuss the novel ethical problems created by these gains. Genetic screening forms the focus for the second group of papers, which report experiences in screening and counselling programmes for b-thalassemia, Huntington's disease, and familial amyloidotic polyneuropathy, and point to the need for an international code of ethics in medical genetics before the human genome is mapped. The final group of papers considers the new ethical and policy issues raised by the development of therapies capable of correcting the mutant gene and thus offering truly curative treatment for the hundreds of major, lethal genetic diseases.

DC.CIOMS

eng.

WHODOC

WHO monograph

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